« Nous n’abandonnons jamais ! »

La famille Csmarits de Maria Alm am Steinernen Meer (Autriche).Angi Csmarits est une belle et brillante adolescente de 15 ans, originaire de Maria Alm (dans la région de Salzbourg en Autriche), qui est épileptique depuis l’âge de 10 ans. Elle est l’aînée...

« I love someone with epilepsy »

Andrea and Ralf Budweiser from Gschwend Ralf loves Andrea. Andrea loves Ralf. Since 1999. And they got married in 2007. Before that, they quickly built a house in Gschwend. With a heated outdoor pool. It’s that simple. Totally normal. Two lovable people who you...

« Mommy, I’m afraid to die »

Selina, soon to be 6 years old, has epilepsy. She is a picture-perfect bright adorable girl with big eyes. The first major seizure was in November last year, before that there were repeated absences since 2019. No one was prepared for a grand mal seizure that ended up...

A life with epilepsy and love

Florian from MunichFlorian is 40 years old, the younger of two brothers, and lives with his 76-year-old mother in Munich. Florian has had epilepsy since he was 9 years old, possibly as a result of meningitis/encephalitis that was detected too late. His mother...

« Parents must be strong for their children »

Diagnosis EpilepsyThis is the Köse family who lives in both Germany and Turkey. In October 2020, their daughter Yagmur Tuana had a grand mal seizure at night. At about 5:30 in the morning, the bed shook heavily. Arzu looked at her daughter and thought she was joking...

Father Keith tells about his son Thomas who has Dravet Syndrome

Our son, Thomas, is now 20 years old and lives with myself and his mum Sarah. His older sister, Kate, lives in her own rented house and works for an estate agent. I gave up work as a service engineer about 3 years ago to be more available as a carer for Thomas. His...