The heartbreaking story of Alessia and her battle against epilepsy

A father’s struggle to raise awareness and raise funds. Hi! My name is Alessia Giddelo, and I want to tell you my story. I am 7 years old, and I have had significant health problems since birth. I suffered from oxygen deficiency, had a severe infection, and...

Kuba is an 8-year-old boy who suffers from Dravet Syndrome

Kuba’s arrival into the world was already difficult; the doctors had to breathe on him, and already, as a 6-week-old baby, he had his first epileptic seizure. This was followed by several weeks of hospitalisation, where he underwent an immense amount of...

Don’t annoy me about the epilepsy, mom!

MERRY CHRISTMAS…. we will not give up😊 ...there are times when children, and also those affected by epilepsy, do not want to know anything about their illness. They don't want to know anything about their parents and are, as they say in Bavaria and Austria,...

Elen, a brave girl with Dravet Syndrome

My name is Lucie; I am the mother of an almost 5-year-old daughter, Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, she was at first sight a healthy baby. However, in her fifth month, she...

“Mom, please help me, the wiggle is coming back”

MERRY CHRISTMAS…. we will not give up😊 ...there are times when children, and also those affected by epilepsy, do not want to know anything about their illness. They don't want to know anything about their parents and are, as they say in Bavaria and Austria,...

Thomas Porschen – the new NightWatch Ambassador for Germany

MERRY CHRISTMAS…. we will not give up😊 ...there are times when children, and also those affected by epilepsy, do not want to know anything about their illness. They don't want to know anything about their parents and are, as they say in Bavaria and Austria,...