My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...
My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...
My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...
The EpilepsyWalk on October 8 2022, in Leiden (NL)Together with the dutch non-profit organization EpilepsieNL, Saskia de Vrey of NightWatch is organizing an epilepsy walk through the beautiful city of Leiden in the Netherlands (headquarters of NightWatch Epilepsy...
My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...
The Csmarits family from Maria Alm am Steinernen Meer (Austria)Angi Csmarits is a 15-year-old pretty and bright teenager from Maria Alm (in the Salzburger Land Region in Austria), who has been affected by epilepsy since she was ten years old. She is the oldest of 3...
