Elen, a brave girl with Dravet Syndrome

My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...

“Mom, please help me, the wiggle is coming back”

My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...

Thomas Porschen – the new NightWatch Ambassador for Germany

My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...

The EpilepsyWalk

The EpilepsyWalk on October 8 2022, in Leiden (NL)Together with the dutch non-profit organization EpilepsieNL, Saskia de Vrey of NightWatch is organizing an epilepsy walk through the beautiful city of Leiden in the Netherlands (headquarters of NightWatch Epilepsy...

“Suddenly Epilepsy”

My name is Lucie, I am the mother of an almost 5-year-old daughter Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she...