A father’s struggle to raise awareness and raise funds. Hi! My name is Alessia Giddelo, and I want to tell you my story. I am 7 years old, and I have had significant health problems since birth. I suffered from oxygen deficiency, had a severe infection, and...
Kuba’s arrival into the world was already difficult; the doctors had to breathe on him, and already, as a 6-week-old baby, he had his first epileptic seizure. This was followed by several weeks of hospitalisation, where he underwent an immense amount of...
MERRY CHRISTMAS…. we will not give up😊 ...there are times when children, and also those affected by epilepsy, do not want to know anything about their illness. They don't want to know anything about their parents and are, as they say in Bavaria and Austria,...
My name is Lucie; I am the mother of an almost 5-year-old daughter, Elen, who suffers from Dravet syndrome. We live with our family in Prague, Czech Republic. When Elen came into the world, she was at first sight a healthy baby. However, in her fifth month, she...
MERRY CHRISTMAS…. we will not give up😊 ...there are times when children, and also those affected by epilepsy, do not want to know anything about their illness. They don't want to know anything about their parents and are, as they say in Bavaria and Austria,...
