How do you let a teenager grow up with freedom when there’s always a chance of an epileptic seizure? In this blog, a mother and her 14-year-old daughter share their story. About letting go, setting boundaries, school trips, and the ongoing search for balance. An...
A mother wins in the social court the assumption of costs for night-time monitoring Do you know the DIN A 13 tanzcompany? «The DIN A 13 tanzcompany is internationally one of the few dance ensembles whose members are composed of dancers with and without physical...
“Patient conversation regarding risk management in epilepsy should be documented in written form” Thomas Porschen, 57, married and a real «Kölscher Jung» (“a real boy from Cologne”), is a well-known and highly appreciated figure in the German and European epilepsy...
A unique example of how NightWatch works within care facility Careander due to the brand-independent platform of IQ Messenger. NightWatch is now being used by many care facilities in the Netherlands. The system helps detect potentially dangerous (clinically...
Our son, Thomas, is now 20 years old and lives with me and his mum Sarah. His older sister, Kate, lives in her own rented house and works for an estate agent. I gave up work as a service engineer about three years ago to be more available as a carer for Thomas. His...
Stupid monster, yes, that’s what you are, epilepsy. Our boys suffer a lot because of you; you come and go. You are in their head, their body, their emotions, and their behaviour. Without you, they are pure, cool, naughty and themselves. But because of you, and against...
