{"id":38033,"date":"2024-03-06T16:39:06","date_gmt":"2024-03-06T15:39:06","guid":{"rendered":"https:\/\/nightwatchepilepsy.com\/?p=38033"},"modified":"2026-09-16T12:26:38","modified_gmt":"2026-09-16T11:26:38","slug":"het-hartverscheurende-verhaal-van-alessia","status":"publish","type":"post","link":"https:\/\/nightwatchepilepsy.com\/nl\/het-hartverscheurende-verhaal-van-alessia\/","title":{"rendered":"Het hartverscheurende verhaal van Alessia en haar strijd tegen epilepsie"},"content":{"rendered":"\n<div class=\"et_pb_section_0 et_pb_section et_section_regular et_block_section preset--module--divi-section--default\"><div class=\"et_pb_row_0 et_pb_row et_block_row\"><div class=\"et_pb_column_0 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_0 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><h2><strong>De strijd van een vader om bewustzijn te cre\u00ebren en fondsen te werven.<\/strong><\/h2>\n<\/div><\/div><\/div><\/div><div class=\"et_pb_row_1 et_pb_row et_block_row\"><div class=\"et_pb_column_1 et_pb_column et_pb_column_2_3 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_1 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p>Hoi! Mijn naam is Alessia Giddelo en ik wil jullie graag mijn verhaal vertellen.<\/p>\n<p>Ik ben 7 jaar en al sinds mijn geboorte heb ik grote gezondheidsproblemen. Ik had zuurstoftekort, kreeg een zware infectie en kon de eerste dagen niet zelfstandig ademen. Op dag drie kwamen daar nog een hersenbloeding, een hersenvliesontsteking en een hersenontsteking bij. Daardoor heb ik hersenschade opgelopen en lijd ik aan cerebrale parese, of hersenverlamming, en epilepsie. Daarnaast kamp ik ook nog eens met autisme.<\/p>\n<p>Na 89 dagen intensieve behandelingen en zorg mocht ik eindelijk naar huis. Meerdere keren per jaar beland ik in het ziekenhuis door mijn epilepsie en immuniteitsproblemen. In de loop van de tijd ontwikkelde ik het syndroom van West, later Lennox, Gastaut en ESES.<\/p>\n<p>Daarnaast heb ik een mentale en motorische beperking.<\/p>\n<p>Ik kan niet praten en lopen, dus helaas kan ik mama en papa ook niet vertellen wanneer ik pijn heb of mij niet goed voel. Gelukkig word ik goed geholpen door mijn ouders, grootouders en familie.<\/p>\n<p>Het jaar 2023 was het jaar van het dieptepunt. Het nieuwe jaar startte ik in het ziekenhuis. Ik moest drie operaties ondergaan waarvan twee hersenoperaties. Ook de epilepsie was verergerd. Helaas krijg ik mijn epilepsie niet onder controle ondanks het uitproberen van verschillende medicatie.<\/p>\n<\/div><\/div><\/div><div class=\"et_pb_column_2 et_pb_column et_pb_column_1_3 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_0 et_pb_image et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-1-scaled-e1709737299448.jpg\" width=\"960\" height=\"1280\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-1-scaled-e1709737299448.jpg 960w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 960px, 100vw\" class=\"wp-image-37990\" title=\"NightWatch_story_Alessia-1\" \/><\/span><\/div><\/div><\/div><\/div><div class=\"et_pb_section_1 et_pb_section et_section_regular et_block_section preset--module--divi-section--default\"><div class=\"et_pb_row_2 et_pb_row et_block_row\"><div class=\"et_pb_column_3 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_2 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p>Het meest impactvolle probleem is momenteel de epilepsie. Dat raakt maar niet onder controle. Het laatste half jaar heb ik bijna dagelijks aanvallen. Soms is er eens een dag zonder, andere dagen heb ik er drie op een dag. Ik heb een kwaadaardige vorm van epilepsie of \u2018stille\u2019 epilepsie. Veel mensen denken vooral aan het klassieke beeld van schokken, maar bij mij uit zich dat bijvoorbeeld anders. Ik verstijf en word heel stil, zogenaamde focale aanvallen. Medicatie dempt het wel een beetje, maar de epilepsie duikt altijd op in een andere vorm en is daardoor heel moeilijk behandelbaar.<\/p>\n<p>Wij hebben onlangs een NightWatch aangeschaft zodat papa en mama een melding krijgen als ik \u2019s nachts een epilepsieaanval krijg. Helaas wordt ook dat hier niet terugbetaald.<\/p>\n<p>Daarom heeft papa met de steun van mama besloten dat deze problemen meer aandacht verdienen. Hij wil zijn hobby en liefde voor mij laten samenkomen om meer bewustzijn te cre\u00ebren en geld op te halen zodat de nodige hulpmiddelen aangeschaft kunnen worden.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"et_pb_row_3 et_pb_row et_block_row\"><div class=\"et_pb_column_4 et_pb_column et_pb_column_1_2 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_1 et_pb_image et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-3-scaled-e1709737467438.jpg\" width=\"960\" height=\"1280\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-3-scaled-e1709737467438.jpg 960w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 960px, 100vw\" class=\"wp-image-38002\" title=\"NightWatch_story_Alessia-3\" \/><\/span><\/div><\/div><div class=\"et_pb_column_5 et_pb_column et_pb_column_1_2 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_2 et_pb_image et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-5-scaled-e1709737376519.jpg\" width=\"960\" height=\"1280\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-5-scaled-e1709737376519.jpg 960w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 960px, 100vw\" class=\"wp-image-37984\" title=\"NightWatch_story_Alessia-5\" \/><\/span><\/div><\/div><\/div><\/div><div class=\"et_pb_section_2 et_pb_section et_section_regular et_block_section preset--module--divi-section--default\"><div class=\"et_pb_row_4 et_pb_row et_pb_row_1-4_1-2_1-4 et_block_row et_block_row_1-4_1-2_1-4\"><div class=\"et_pb_column_6 et_pb_column et_pb_column_1_4 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_3 et_pb_image et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-4-small.jpg\" width=\"750\" height=\"750\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-4-small.jpg 750w, https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-4-small-480x480.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 750px, 100vw\" class=\"wp-image-38026\" title=\"NightWatch_story_Alessia-4-small\" \/><\/span><\/div><\/div><div class=\"et_pb_column_7 et_pb_column et_pb_column_1_2 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_3 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p>En dus wil papa samen met mijn oom Nicky op 16 juli zo\u2019n 120 uur lang gaan vissen bij hengelclub De Pelikaan in Opgrimbie (Maasmechelen). Doel is om dinsdagmiddag te starten en te vissen tot zondagmiddag 21 juli. De Belgische Epilepsie Liga helpt ons bij de organisatie, dus willen we ook geld inzamelen voor hen. Ook hebben we een crowdfunding opgesteld, waarmee we wat extra hulpmiddelen willen aankopen. \u00a0<\/p>\n<p>De opbrengsten gaan naar de <a href=\"https:\/\/www.epilepsieliga.be\/\" target=\"_blank\" rel=\"noopener\">Belgische Epilepsie Liga <\/a>of crowdfunding voor hulpmiddelen voor Alessia.<\/p>\n<p>Klik op <a href=\"https:\/\/steunactie.be\/actie\/alessia-giddelo\/-31209\" target=\"_blank\" rel=\"noopener\">deze link<\/a>, die u doorverwijst naar een crowdfundingpagina met ons verhaal.<\/p>\n<p>Dank u wel! \ud83d\udc9c<\/p>\n<\/div><\/div><\/div><div class=\"et_pb_column_8 et_pb_column et_pb_column_1_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_4 et_pb_image et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-2-small.jpeg\" width=\"750\" height=\"750\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-2-small.jpeg 750w, https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2024\/03\/NightWatch_story_Alessia-2-small-480x480.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 750px, 100vw\" class=\"wp-image-38020\" title=\"NightWatch_story_Alessia-2-small\" \/><\/span><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Hoi! Mijn naam is Alessia Giddelo en ik wil jullie graag mijn verhaal vertellen. Ik ben 7 jaar en al sinds mijn geboorte heb ik grote gezondheidsproblemen. <\/p>\n","protected":false},"author":3,"featured_media":37979,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[],"class_list":["post-38033","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nightwatch-verhalen"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Het hartverscheurende verhaal van Alessia | Een NightWatch verhaal<\/title>\n<meta name=\"description\" content=\"Hoi! Mijn naam is Alessia Giddelo en ik wil jullie graag mijn verhaal vertellen. 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