{"id":29532,"date":"2022-02-25T14:19:19","date_gmt":"2022-02-25T13:19:19","guid":{"rendered":"https:\/\/nightwatchepilepsy.com\/?p=29532"},"modified":"2022-10-30T22:13:39","modified_gmt":"2022-10-30T21:13:39","slug":"jaime-une-personne-epileptique","status":"publish","type":"post","link":"https:\/\/nightwatchepilepsy.com\/fr\/jaime-une-personne-epileptique\/","title":{"rendered":"\u00ab J’aime une personne \u00e9pileptique \u00bb"},"content":{"rendered":"

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Andrea et Ralf Budweiser, de Gschwend<\/h3>\n<\/div>\n
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Ralph aime Andr\u00e9a. Andrea aime Ralph. Depuis 1999. Et ils se sont mari\u00e9s en 2007. Ils ont rapidement d\u00e9cid\u00e9 de construire une maison \u00e0 Gschwend, avec une piscine ext\u00e9rieure chauff\u00e9e. C’est aussi simple que \u00e7a, tout \u00e0 fait normal. Deux personnes adorables que vous prenez imm\u00e9diatement dans votre c\u0153ur. Tous deux sont salari\u00e9s \u00e0 plein temps, au bureau et comme menuisiers. Ralf est un \u00ab conducteur bouledogue \u00bb de naissance \u2013 c’est ainsi qu’on appelle les \u00ab Schlepperfans \u00bb en allemand normal : \u00ab fans de tracteurs \u00bb dans les r\u00e9gions du sud de l’Allemagne. Ralf est pr\u00e9sident du club local de tracteurs anciens et membre des pompiers, un v\u00e9ritable sauveteur. Et ce n’est pas la seule raison pour laquelle Andrea aime Ralf.<\/p>\n

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Comment Ralf et Andrea sont devenus un couple<\/strong>
\n<\/span>Ils se sont connus en 1999 \u00e0 la \u00ab Badseefest \u00bb, lors des \u00ab Br\u00fchzuberrennen \u00bb, une comp\u00e9tition de pagaie originale dans des tubes en bois, organis\u00e9e chaque ann\u00e9e depuis 1977 par la DLRG (Association allemande de sauvetage) au Badsee \u00e0 Gschwend, \u00e0 l’occasion de la \u00ab Badseefeschd \u00bb. Andrea (n\u00e9e en 1981) \u00e9tait spectatrice et Ralph et ses copains ont gagn\u00e9 une des courses. Ralf (n\u00e9 en 1976) : \u00ab\u00a0J’ai obtenu son num\u00e9ro de t\u00e9l\u00e9phone par un copain pompier, puis \u00e0 un moment donn\u00e9, je l’ai appel\u00e9e pour l\u2019inviter \u00e0 sortir. Nous avons craqu\u00e9 l\u2019un pour l\u2019autre au march\u00e9 de No\u00ebl de Stuttgart et nous nous sommes embrass\u00e9s pour la premi\u00e8re fois. Depuis, ils forment un couple ins\u00e9parable.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Ralf et Andrea vivent leur vie \u00e0 travers vents et mar\u00e9es, dans le vrai sens du terme, car cela signifie qu’ils se soutiennent mutuellement dans toutes les situations, \u00ab sans si ni mais \u00bb.<\/p>\n

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Les exp\u00e9riences \u00e9pileptiques d’Andrea
<\/strong><\/span>Andrea est \u00e9pileptique depuis sa naissance et a toujours eu de nombreuses crises dans sa vie, surtout pendant la nuit. Elle subit encore la plupart des crises nocturnes de mani\u00e8re inconsciente et aimerait savoir si NightWatch peut aider le couple \u00e0 enregistrer toutes les crises nocturnes et \u00e0 administrer \u00e0 temps des m\u00e9dicaments d’urgence, si n\u00e9cessaire.<\/p>\n

Depuis qu’Andrea a commenc\u00e9 un r\u00e9gime c\u00e9tog\u00e8ne, il y a trois ans, la gravit\u00e9 de ses crises a diminu\u00e9 progressivement. \u00ab Avant, je devais me d\u00e9battre avec mes bras et mes jambes, mais depuis le changement de r\u00e9gime alimentaire, je n’ai plus de crises aussi graves, juste des crampes, et les crises surviennent g\u00e9n\u00e9ralement la nuit vers 1h du matin. \u00bb Elle a fait preuve de discipline en suivant les directives di\u00e9t\u00e9tiques et depuis lors, elle va mieux dans l\u2019ensemble. La chirurgie a \u00e9t\u00e9 exclue dans son cas, car le risque d’affecter les centres de la parole ou de la motricit\u00e9 dans le cerveau serait trop grand. \u00ab Quand j’ai une crise, j’ai parfois une aura avant et je peux la supprimer avec 0,5 mg de Tavor, la ration d’urgence est toujours pr\u00eate sur la table de chevet \u00bb.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Quand Andrea \u00e9tait plus jeune, les m\u00e9dicaments ont entra\u00een\u00e9 une prise de poids inexpliqu\u00e9e et il a fallu plusieurs changements de m\u00e9dicaments pour qu’elle retrouve un poids normal. \u00ab Avant, je pesais 120 kilos, ce n’est que lorsque j’ai chang\u00e9 de m\u00e9dicament que j’ai perdu mes kilos et j’ai \u00e9galement subi un certain nombre de chirurgies esth\u00e9tiques. \u00bb Ralf aide \u00e0 la cicatrisation des plaies. \u00ab Le m\u00e9decin m’a demand\u00e9 si je n\u2019avais pas de probl\u00e8me \u00e0 la vue du sang. \u00bb En tant que pompier, pas de probl\u00e8me. Andrea\u00a0: \u00ab Il a d\u00fb nettoyer les plaies sur mes fesses pendant 3 mois parce qu\u2019un probl\u00e8me de cicatrisation s’\u00e9tait d\u00e9velopp\u00e9 \u00bb. Quand Ralf a eu un cancer, elle \u00e9tait l\u00e0 pour lui, et aussi avec diverses autres maladies de Ralf, les deux se serrent les coudes, de sorte qu’\u00e0 la fin tout ira bien.<\/p>\n

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J’ai rencontr\u00e9 Ralf et Andrea lors d’un s\u00e9minaire de l’Association de l’\u00e9pilepsie du Bade-Wurtemberg. Peu de temps avant cela, elle a subi un EEG approfondi \u00e0 l’h\u00f4pital universitaire de T\u00fcbingen et, au cours de cet examen, une inflammation s’est d\u00e9velopp\u00e9e dans le cerveau avec un abc\u00e8s. Andrea a pass\u00e9 la r\u00e9\u00e9ducation suivante au lac de Constance. Ralf lui rendait r\u00e9guli\u00e8rement visite avec son propre camping-car : \u00ab J’avais un emplacement au camping \u00e0 Constance juste au bord de l’eau, ce qui \u00e9tait agr\u00e9able. \u00bb Et c’est aussi l’un des autres passe-temps du couple\u00a0: des voyages en caravane, profiter des environs du lac de Constance, faire des tours \u00e0 v\u00e9lo et profiter de la nature sans stress.<\/p>\n

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Le conseil d’Andrea et Ralf pour les patients \u00e9pileptiques
<\/strong><\/span>Faites face \u00e0 la maladie ouvertement et en toute confiance, n’en faites pas le centre de votre vie, ne laissez pas la maladie vous contr\u00f4ler.<\/p>\n

Andrea a toujours \u00e9t\u00e9 ouverte avec son \u00e9pilepsie, y compris envers Ralf, depuis le tout d\u00e9but. Ralf n’avait jamais entendu parler d’\u00e9pilepsie et il aime son Andrea telle qu’elle est. Lorsqu’elle a eu une crise s\u00e9v\u00e8re et prolong\u00e9e pendant la nuit, il a appel\u00e9 une ambulance. \u00ab L’\u00e9pilepsie, fait juste partie de la vie de tous les jours, les probl\u00e8mes ne surviennent que la nuit, quand elle frappe et que je me r\u00e9veille avec un \u0153il au beurre noir, parfois elle en re\u00e7oit un en retour \u00bb Ils en rient tous les deux de bon c\u0153ur.<\/p>\n

Une histoire NightWatch par Birgit-Elisabeth Langen, f\u00e9vrier 2022<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Andrea souffre d\u2019\u00e9pilepsie depuis sa naissance, et a toujours eu de nombreuses crises durant sa vie, principalement la nuit.<\/p>\n","protected":false},"author":1,"featured_media":29538,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[23],"tags":[],"class_list":["post-29532","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nightwatch-stories"],"yoast_head":"\nJ'aime une personne \u00e9pileptique | Une histoire NightWatch<\/title>\n<meta name=\"description\" content=\"Andrea souffre d\u2019\u00e9pilepsie depuis sa naissance, et a toujours eu de nombreuses crises durant sa vie, principalement la nuit. 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