{"id":33833,"date":"2021-03-16T18:15:32","date_gmt":"2021-03-16T18:15:32","guid":{"rendered":"https:\/\/nightwatchepilepsy.com\/?page_id=33833"},"modified":"2026-09-16T13:23:31","modified_gmt":"2026-09-16T12:23:31","slug":"stories-5","status":"publish","type":"page","link":"https:\/\/nightwatchepilepsy.com\/es\/stories-5\/","title":{"rendered":"Stories"},"content":{"rendered":"\n
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Behind every NightWatch is a story worth telling<\/span><\/h2>\n<\/div>\n
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Our NightWatch stories come from people who have been affected by epilepsy. This illness is accompanied by fears, insecurity and the search for help to cope with daily life and to feel safe. In many cases, NightWatch is introduced as a daily sleep companion, in addition to good medical care.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div><\/div><\/div>

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NightWatch Stories<\/h4><\/div><\/div><\/div>
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Share your own story<\/h4><\/div><\/div><\/div><\/div>
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User experiences<\/h4><\/div><\/div><\/div>
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NightWatch colouring picture<\/h4><\/div><\/div><\/div><\/div><\/div><\/div>
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NightWatch Stories<\/span><\/h1>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>
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One Family. Eleven kids. Seven NightWatch. Read their amazing story.<\/h2>\n

\u200bThe Linders from Germany have 11 children and 7 of them have untreatable epilepsy with nocturnal seizures. We visited the Linder family at home and report on the large family, which is a role model for liveliness, love and structured everyday coping.<\/p>\n<\/div><\/div><\/div><\/div>

\"Between<\/span><\/a><\/div>

Between freedom and safety – Epilepsy in the life of a teenager (and her mother)<\/a><\/h2>

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How do you let a teenager grow up with freedom when there\u2019s always a chance of an epileptic seizure? In this blog, a mother and her 14-year-old daughter share their story.<\/p>\n<\/div><\/div><\/article>

\"\u00abMom,<\/span><\/a><\/div>

\u00abMom, please help me, the wiggle is coming back\u00bb<\/a><\/h2>

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Aurora was diagnosed with West syndrome \/ BNS epilepsy at 7 months of age and her mother wins in the social court the assumption of costs for night-time monitoring.<\/p>\n<\/div><\/div><\/article>

\"Thomas<\/span><\/a><\/div>

Thomas Porschen – the new NightWatch Ambassador for Germany<\/a><\/h2>

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Thomas Porschen, 57, married is a well-known and highly appreciated figure in the German and European epilepsy self-help community.<\/p>\n<\/div><\/div><\/article>

\"Connecting<\/span><\/a><\/div>

Connecting NightWatch to a Smart Alarm Software Platform<\/a><\/h2>

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A unique example of how NightWatch works within care facility Careander due to the brand-independent platform of IQ Messenger. NightWatch is now being used by many care facilities in the Netherlands. The system helps detect potentially dangerous (clinically...<\/p>\n<\/div><\/div><\/article>

\"Keith<\/span><\/a><\/div>

Keith talks about his son Thomas who has Dravet Syndrome<\/a><\/h2>

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Our son, Thomas, is now 20 years old and lives with me and his mum Sarah. His older sister, Kate, lives in her own rented house and works for an estate agent. I gave up work as a service engineer about three years ago to be more available as a carer for Thomas. His...<\/p>\n<\/div><\/div><\/article>

\"NightWatch<\/span><\/a><\/div>

NightWatch and our day and residential care facility<\/a><\/h2>

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Stupid monster, yes, that\u2019s what you are, epilepsy. Our boys suffer a lot because of you; you come and go. You are in their head, their body, their emotions, and their behaviour. Without you, they are pure, cool, naughty and themselves. But because of you, and against...<\/p>\n<\/div><\/div><\/article>

\"Stichting<\/span><\/a><\/div>

Stichting Philadelphia Zorg receives the 500th NightWatch!<\/a><\/h2>

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On behalf of Stichting Philadelphia Zorg, the team at the Westerhof site in Vlissingen (a facility for older people with a mental handicap) received the 500th \u201cNightWatch\u201d night-time epilepsy detection system from\u00a0Jeroen van den Hout\u00a0of LivAssured, surrounded by a...<\/p>\n<\/div><\/div><\/article>

\"SUDEP,<\/span><\/a><\/div>

SUDEP, what are the risks and is there anything you can do about it?<\/a><\/h2>

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My name is Asmund Tielens and I am the founder and CTO of LivAssured (manufacturer of the NightWatch). My wife and I have three children: a daughter and two sons. In the blog below, I talk about my views of SUDEP (Sudden Unexpected Death in Epilepsy). When it comes to...<\/p>\n<\/div><\/div><\/article>

\"NightWatch<\/span><\/a><\/div>

NightWatch and Neuroventis are now fully connected<\/a><\/h2>

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1+1=3. NightWatch and Neuroventis connect their services and provide a breakthrough in the care of people with epilepsy A unique collaboration between a Belgian and Dutch MedTech scale-up offers people with epilepsy more safety and control over their condition. It is...<\/p>\n<\/div><\/div><\/article>

\"\u00abParents<\/span><\/a><\/div>

\u00abParents must be strong for their children\u00bb<\/a><\/h2>

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Epilepsy diagnosis This is the K\u00f6se family who lives in both Germany and Turkey. In October 2020, their daughter Yagmur Tuana had a grand mal seizure at night. At about 5:30 in the morning, the bed began shaking heavily. Arzu looked at her daughter and...<\/p>\n<\/div><\/div><\/article>

\"A<\/span><\/a><\/div>

A life with epilepsy and love<\/a><\/h2>

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Florian from Munich Florian is 40 years old, the younger of two brothers, who lives with his 76 year old mother in Munich. Florian has had epilepsy since he was nine years old, possibly as a result of meningitis\/encephalitis that was detected too late. His mother...<\/p>\n<\/div><\/div><\/article>

\"\u201cMummy,<\/span><\/a><\/div>

\u201cMummy, I\u2019m scared I\u2019m going to die\u201d<\/a><\/h2>

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Selina, soon to be 6 years old, has epilepsy. She is a picture-perfect, bright, adorable girl with big eyes. The first major seizure was in November last year, but before that there had been repeated absences since 2019. No one was prepared for a grand mal seizure...<\/p>\n<\/div><\/div><\/article>

\"\u00abI<\/span><\/a><\/div>

\u00abI love someone with epilepsy\u00bb<\/a><\/h2>

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Andrea and Ralf Budweiser from Gschwend Ralf loves Andrea. Andrea loves Ralf. They have been together since 1999 and they got married in 2007. Before that, they quickly built a house with a heated outdoor pool in Gschwend in Germany. It\u2019s that simple, just normal. Two...<\/p>\n<\/div><\/div><\/article>

\"\u00abWe<\/span><\/a><\/div>

\u00abWe never give up!\u201d<\/a><\/h2>

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The Csmarits family from Maria Alm am Steinernen Meer (Austria) Angi Csmarits is a 15-year-old pretty and bright teenager from Maria Alm (in the Salzburger Land Region in Austria), who has been affected by epilepsy since she was ten years old. She is the oldest of 3...<\/p>\n<\/div><\/div><\/article>

\"\u00abSuddenly<\/span><\/a><\/div>

\u00abSuddenly Epilepsy\u00bb<\/a><\/h2>

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MERRY CHRISTMAS\u2026. we will not give up\ud83d\ude0a ...there are times when children, and also those affected by epilepsy, do not want to know anything about their illness. They don't want to know anything about their parents and are, as they say in Bavaria and Austria,...<\/p>\n<\/div><\/div><\/article>

\"The<\/span><\/a><\/div>

The EpilepsyWalk<\/a><\/h2>

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The EpilepsyWalk on October 8 2022, in Leiden (NL) Together with the dutch non-profit organization EpilepsieNL, Saskia de Vrey of NightWatch is organizing an epilepsy walk through the beautiful city of Leiden in the Netherlands (headquarters of NightWatch Epilepsy...<\/p>\n<\/div><\/div><\/article><\/div><\/div><\/div>

Stories from our own NightWatch team<\/a><\/div><\/div><\/div><\/div>
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Share your NightWatch Story<\/span><\/h1>\n<\/div>\n
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We at NightWatch have noticed that there is still far too little talk about epilepsy and how to cope with everyday life. We would like to change this. We encourage you to tell us your story because behind every NightWatch there are people. When you tell your story, you share the knowledge you have gained over time and help others better understand daily life with epilepsy, share concerns and protect lives.<\/p>\n

Call us or write your NightWatch story:<\/p>\n\n\n\n
<\/path><\/path><\/g><\/svg><\/td>\n+31 (0)6 21 90 34 19<\/a><\/td>\n<\/tr>\n
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