{"id":46806,"date":"2023-04-18T16:22:49","date_gmt":"2023-04-18T15:22:49","guid":{"rendered":"https:\/\/nightwatchepilepsy.com\/elen-dravet-syndrome\/"},"modified":"2026-09-16T12:26:43","modified_gmt":"2026-09-16T11:26:43","slug":"elen-dravet-syndrome","status":"publish","type":"post","link":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/","title":{"rendered":"Elen, a brave girl with Dravet Syndrome"},"content":{"rendered":"\n<div class=\"et_pb_section_0 et_pb_section et_section_regular et_block_section preset--module--divi-section--default\"><div class=\"et_pb_row_0 et_pb_row et_block_row\"><div class=\"et_pb_column_0 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_0 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p>My name is Lucie; I am the mother of an almost 5-year-old daughter, Elen, who suffers from <a href=\"https:\/\/dravetfoundation.org\/\" target=\"_blank\" rel=\"noopener\">Dravet syndrome<\/a>. We live with our family in Prague, Czech Republic.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"et_pb_row_1 et_pb_row et_block_row\"><div class=\"et_pb_column_1 et_pb_column et_pb_column_4_4 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_0 et_pb_image et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen.jpg\" width=\"1280\" height=\"854\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen.jpg 1280w, https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen-980x654.jpg 980w, https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen-480x320.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1280px, 100vw\" class=\"wp-image-35392\" title=\"NightWatch_Lucie+Elen\" \/><\/span><\/div><\/div><\/div><\/div><div class=\"et_pb_section_1 et_pb_section et_section_regular et_block_section preset--module--divi-section--default\"><div class=\"et_pb_row_2 et_pb_row et_block_row\"><div class=\"et_pb_column_2 et_pb_column et_pb_column_1_2 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_1 et_pb_text et_pb_bg_layout_light et_pb_module et_flex_module\"><div class=\"et_pb_text_inner\"><p>When Elen came into the world, she was at first sight a healthy baby. However, in her fifth month, she suffered a prolonged epileptic seizure that lasted more than 40 minutes. After several more seizures and hospitalisations, genetic tests revealed that she suffered from a rare and severe form of gene epilepsy - Dravet syndrome, also called <a href=\"https:\/\/en.wikipedia.org\/wiki\/Dravet_syndrome\" target=\"_blank\" rel=\"noopener\">Severe Myoclonic Epilepsy of Infancy (SMEI)<\/a>. Although the disease is genetic, she did not inherit it from either parent; it was just a \"gene fault\" early in pregnancy. Dravet syndrome is also associated with many other associated diagnoses, such as delayed psychomotor development, hypotonia, attention deficit disorder, unsteady walking, etc. Although Elen looks like a healthy four-year-old girl, she has many limitations in her life. For instance, she has to follow a strict and regular regime, be under constant supervision, stay with the children in the playground, not have too much fun, and not go outside in summer when it is hot outside. All this can lead to a seizure with unconsciousness, which can further delay her development.<\/p>\n<p>Unfortunately, despite all precautions and four different anti-epileptic drugs, Elen has a more significant seizure every week. She can also have seizures during sleep, so we are happy to use NightWatch now.<\/p>\n<p>All these conditions affect our whole family, who must adapt their lives to Elen's needs. Elen cannot attend kindergarten because she tires easily and often sleeps during the day. Despite all the complications, Elen is a very smart and bright four-year-old girl who energises the whole family with her tremendous strength. As her parents, we are happy she has shown us a new path.<\/p>\n<\/div><\/div><\/div><div class=\"et_pb_column_3 et_pb_column et_pb_column_1_2 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_1 et_pb_image et_pb_module et_flex_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_Elen_arm-module.jpg\" title=\"NightWatch_Elen_arm-module\" width=\"960\" height=\"1280\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_Elen_arm-module.jpg 960w, https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_Elen_arm-module-480x640.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 960px, 100vw\" class=\"wp-image-35404\" \/><\/span><\/div><\/div><\/div><\/div><div class=\"et_pb_section_2 et_pb_section et_section_regular et_block_section preset--module--divi-section--default\"><div class=\"et_pb_row_3 et_pb_row et_block_row\"><div class=\"et_pb_column_4 et_pb_column et_pb_column_1_3 et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_image_2 et_pb_image et_pb_module et_block_module\"><span class=\"et_pb_image_wrap\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_Elen_Buddy.jpg\" width=\"796\" height=\"1280\" srcset=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_Elen_Buddy.jpg 796w, https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_Elen_Buddy-480x772.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 796px, 100vw\" class=\"wp-image-35398\" title=\"NightWatch_Elen_Buddy\" \/><\/span><\/div><\/div><div class=\"et_pb_column_5 et_pb_column et_pb_column_2_3 et-last-child et_block_column et_pb_css_mix_blend_mode_passthrough\"><div class=\"et_pb_text_2 et_pb_text et_pb_bg_layout_light et_pb_module et_block_module\"><div class=\"et_pb_text_inner\"><p><span style=\"font-weight: 400;\">At the same time, I run the non-profit organisation Epicana: <a href=\"https:\/\/www.facebook.com\/epicanacz\" target=\"_blank\" rel=\"noopener\">https:\/\/www.facebook.com\/epicanacz<\/a>. Together with my husband and other parents of sick children, we founded the non-profit patient organisation <a href=\"https:\/\/www.epicana.cz\/\">Epicana<\/a> with the aim of helping children with epilepsy, in particular Dravet syndrome, and their families in the Czech Republic. For example, we organise a special summer camp for families with sick children.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The non-profit organisation <a href=\"https:\/\/www.epicana.cz\/\" target=\"_blank\" rel=\"noopener\">EPICANA<\/a> z.\u00fa. aims to help children and adults with a neurological disease such as epilepsy and to organise cultural and educational events in support of people with epilepsy, especially with Dravet syndrome. <\/span><span style=\"font-weight: 400;\">EPICANA has plans to organise epilepsy and other similar meetings of whole families, charity and cultural events, but also focuses on targeted financial assistance to families through the purchase of necessary compensatory aids and rehabilitation, emergency services, medical interventions not covered by insurance companies, etc.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The establishment of the non-profit organisation Epicana came about due to the illness of our daughter Elen.<\/span><\/p>\n<p><span style=\"font-weight: 400;\"><br \/>Lucie Miczova<\/span><\/p>\n<p><a href=\"https:\/\/www.epicana.cz\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">www.epicana.cz<\/span><\/a><\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes. <\/p>\n","protected":false},"author":3,"featured_media":46807,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[74],"tags":[],"class_list":["post-46806","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized-en-us"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Elen, a brave girl with Dravet Syndrome | A NightWatch Story<\/title>\n<meta name=\"description\" content=\"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Elen, a brave girl with Dravet Syndrome | A NightWatch Story\" \/>\n<meta property=\"og:description\" content=\"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/\" \/>\n<meta property=\"og:site_name\" content=\"NightWatch\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/EpilepsySeizureDetectionEN\" \/>\n<meta property=\"article:published_time\" content=\"2023-04-18T15:22:49+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-09-16T11:26:43+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"854\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Danny Reiffers\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Elen, a brave girl with Dravet Syndrome | A NightWatch Story\" \/>\n<meta name=\"twitter:description\" content=\"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen.jpg\" \/>\n<meta name=\"twitter:creator\" content=\"@NightWatchAlarm\" \/>\n<meta name=\"twitter:site\" content=\"@NightWatchAlarm\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Danny Reiffers\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/\"},\"author\":{\"name\":\"Danny Reiffers\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#\\\/schema\\\/person\\\/6f5e033532cffd9823cb1bf490fc6be5\"},\"headline\":\"Elen, a brave girl with Dravet Syndrome\",\"datePublished\":\"2023-04-18T15:22:49+00:00\",\"dateModified\":\"2026-09-16T11:26:43+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/\"},\"wordCount\":7,\"publisher\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/NightWatch_LucieElen_small.jpg\",\"articleSection\":[\"Uncategorized @en-us\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/\",\"url\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/\",\"name\":\"Elen, a brave girl with Dravet Syndrome | A NightWatch Story\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/NightWatch_LucieElen_small.jpg\",\"datePublished\":\"2023-04-18T15:22:49+00:00\",\"dateModified\":\"2026-09-16T11:26:43+00:00\",\"description\":\"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/#primaryimage\",\"url\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/NightWatch_LucieElen_small.jpg\",\"contentUrl\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/wp-content\\\/uploads\\\/2023\\\/04\\\/NightWatch_LucieElen_small.jpg\",\"width\":640,\"height\":640},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/elen-dravet-syndrome\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Elen, a brave girl with Dravet Syndrome\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#website\",\"url\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/\",\"name\":\"NightWatch\",\"description\":\"Epilepsy seizure detection | Warns during sleep\",\"publisher\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#organization\",\"name\":\"NightWatch Epilepsy Seizure Detection\",\"alternateName\":\"NightWatch\",\"url\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/wp-content\\\/uploads\\\/2023\\\/02\\\/NightWatch-Logo.png\",\"contentUrl\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/wp-content\\\/uploads\\\/2023\\\/02\\\/NightWatch-Logo.png\",\"width\":696,\"height\":696,\"caption\":\"NightWatch Epilepsy Seizure Detection\"},\"image\":{\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/EpilepsySeizureDetectionEN\",\"https:\\\/\\\/x.com\\\/NightWatchAlarm\",\"https:\\\/\\\/www.linkedin.com\\\/company\\\/nightwatch-epilepsy-detection\\\/\",\"https:\\\/\\\/www.instagram.com\\\/nightwatch_epilepsie_detectie\\\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/#\\\/schema\\\/person\\\/6f5e033532cffd9823cb1bf490fc6be5\",\"name\":\"Danny Reiffers\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/3373b743d9c71b7928adfc361473828885b6ec010d1b52fbcaa9514c748301f4?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/3373b743d9c71b7928adfc361473828885b6ec010d1b52fbcaa9514c748301f4?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/3373b743d9c71b7928adfc361473828885b6ec010d1b52fbcaa9514c748301f4?s=96&d=mm&r=g\",\"caption\":\"Danny Reiffers\"},\"url\":\"https:\\\/\\\/nightwatchepilepsy.com\\\/en-us\\\/author\\\/danny\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Elen, a brave girl with Dravet Syndrome | A NightWatch Story","description":"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/","og_locale":"en_US","og_type":"article","og_title":"Elen, a brave girl with Dravet Syndrome | A NightWatch Story","og_description":"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.","og_url":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/","og_site_name":"NightWatch","article_publisher":"https:\/\/www.facebook.com\/EpilepsySeizureDetectionEN","article_published_time":"2023-04-18T15:22:49+00:00","article_modified_time":"2026-09-16T11:26:43+00:00","og_image":[{"width":1280,"height":854,"url":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen.jpg","type":"image\/jpeg"}],"author":"Danny Reiffers","twitter_card":"summary_large_image","twitter_title":"Elen, a brave girl with Dravet Syndrome | A NightWatch Story","twitter_description":"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.","twitter_image":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen.jpg","twitter_creator":"@NightWatchAlarm","twitter_site":"@NightWatchAlarm","twitter_misc":{"Written by":"Danny Reiffers","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/#article","isPartOf":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/"},"author":{"name":"Danny Reiffers","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#\/schema\/person\/6f5e033532cffd9823cb1bf490fc6be5"},"headline":"Elen, a brave girl with Dravet Syndrome","datePublished":"2023-04-18T15:22:49+00:00","dateModified":"2026-09-16T11:26:43+00:00","mainEntityOfPage":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/"},"wordCount":7,"publisher":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#organization"},"image":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/#primaryimage"},"thumbnailUrl":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen_small.jpg","articleSection":["Uncategorized @en-us"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/","url":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/","name":"Elen, a brave girl with Dravet Syndrome | A NightWatch Story","isPartOf":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#website"},"primaryImageOfPage":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/#primaryimage"},"image":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/#primaryimage"},"thumbnailUrl":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen_small.jpg","datePublished":"2023-04-18T15:22:49+00:00","dateModified":"2026-09-16T11:26:43+00:00","description":"When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes.","breadcrumb":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/#primaryimage","url":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen_small.jpg","contentUrl":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/04\/NightWatch_LucieElen_small.jpg","width":640,"height":640},{"@type":"BreadcrumbList","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/elen-dravet-syndrome\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/nightwatchepilepsy.com\/en-us\/"},{"@type":"ListItem","position":2,"name":"Elen, a brave girl with Dravet Syndrome"}]},{"@type":"WebSite","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#website","url":"https:\/\/nightwatchepilepsy.com\/en-us\/","name":"NightWatch","description":"Epilepsy seizure detection | Warns during sleep","publisher":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/nightwatchepilepsy.com\/en-us\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#organization","name":"NightWatch Epilepsy Seizure Detection","alternateName":"NightWatch","url":"https:\/\/nightwatchepilepsy.com\/en-us\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#\/schema\/logo\/image\/","url":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/02\/NightWatch-Logo.png","contentUrl":"https:\/\/nightwatchepilepsy.com\/wp-content\/uploads\/2023\/02\/NightWatch-Logo.png","width":696,"height":696,"caption":"NightWatch Epilepsy Seizure Detection"},"image":{"@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/EpilepsySeizureDetectionEN","https:\/\/x.com\/NightWatchAlarm","https:\/\/www.linkedin.com\/company\/nightwatch-epilepsy-detection\/","https:\/\/www.instagram.com\/nightwatch_epilepsie_detectie\/"]},{"@type":"Person","@id":"https:\/\/nightwatchepilepsy.com\/en-us\/#\/schema\/person\/6f5e033532cffd9823cb1bf490fc6be5","name":"Danny Reiffers","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/secure.gravatar.com\/avatar\/3373b743d9c71b7928adfc361473828885b6ec010d1b52fbcaa9514c748301f4?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/3373b743d9c71b7928adfc361473828885b6ec010d1b52fbcaa9514c748301f4?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/3373b743d9c71b7928adfc361473828885b6ec010d1b52fbcaa9514c748301f4?s=96&d=mm&r=g","caption":"Danny Reiffers"},"url":"https:\/\/nightwatchepilepsy.com\/en-us\/author\/danny\/"}]}},"_links":{"self":[{"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/posts\/46806","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/comments?post=46806"}],"version-history":[{"count":10,"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/posts\/46806\/revisions"}],"predecessor-version":[{"id":47724,"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/posts\/46806\/revisions\/47724"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/media\/46807"}],"wp:attachment":[{"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/media?parent=46806"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/categories?post=46806"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/nightwatchepilepsy.com\/en-us\/wp-json\/wp\/v2\/tags?post=46806"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}