{"id":46708,"date":"2021-03-16T18:15:32","date_gmt":"2021-03-16T18:15:32","guid":{"rendered":"https:\/\/nightwatchepilepsy.com\/stories\/"},"modified":"2026-09-16T13:23:32","modified_gmt":"2026-09-16T12:23:32","slug":"stories","status":"publish","type":"page","link":"https:\/\/nightwatchepilepsy.com\/en-us\/stories\/","title":{"rendered":"Stories"},"content":{"rendered":"\n
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Behind every NightWatch is a story worth telling<\/span><\/h2>\n<\/div>\n
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Our NightWatch stories come from people who have been affected by epilepsy. This illness is accompanied by fears, insecurity and the search for help to cope with daily life and to feel safe. In many cases, NightWatch is introduced as a daily sleep companion, in addition to good medical care.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div><\/div><\/div>

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NightWatch Stories<\/h4><\/div><\/div><\/div>
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Share your own story<\/h4><\/div><\/div><\/div><\/div>
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User experiences<\/h4><\/div><\/div><\/div>
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NightWatch colouring picture<\/h4><\/div><\/div><\/div><\/div><\/div><\/div>
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NightWatch Stories<\/span><\/h1>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>
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One Family. Eleven kids. Seven NightWatch. Read their amazing story.<\/h2>\n

\u200bThe Linders from Germany have 11 children and 7 of them have untreatable epilepsy with nocturnal seizures. We visited the Linder family at home and report on the large family, which is a role model for liveliness, love and structured everyday coping.<\/p>\n<\/div><\/div><\/div><\/div>

\"Between<\/span><\/a><\/div>

Between freedom and safety – Epilepsy in the life of a teenager (and her mother)<\/a><\/h2>

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How do you let a teenager grow up with freedom when there\u2019s always a chance of an epileptic seizure? In this blog, a mother and her 14-year-old daughter share their story.<\/p>\n<\/div><\/div><\/article>

\"The<\/span><\/a><\/div>

The heartbreaking story of Alessia and her battle against epilepsy<\/a><\/h2>

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Hi! My name is Alessia Giddelo, and I want to tell you my story. I am 7 years old, and I have had significant health problems since birth.<\/p>\n<\/div><\/div><\/article>

\"Kuba<\/span><\/a><\/div>

Kuba is an 8-year-old boy who suffers from Dravet Syndrome<\/a><\/h2>

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Kuba’s arrival into the world was already difficult, as a 6-week-old baby, he had his first epileptic seizure.<\/p>\n<\/div><\/div><\/article>

\"Don’t<\/span><\/a><\/div>

Don’t annoy me about the epilepsy, mom!<\/a><\/h2>

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There are times when children, and also those affected by epilepsy, do not want to know anything about their illness.<\/p>\n<\/div><\/div><\/article>

\"Elen,<\/span><\/a><\/div>

Elen, a brave girl with Dravet Syndrome<\/a><\/h2>

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When Elen came into the world, at first glance she was a healthy baby. However, in her fifth month, she suffered a long epileptic seizure lasting more than 40 minutes. <\/p>\n<\/div><\/div><\/article>

\"“Mom,<\/span><\/a><\/div>

“Mom, please help me, the wiggle is coming back”<\/a><\/h2>

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Aurora was diagnosed with West syndrome \/ BNS epilepsy at 7 months of age and her mother wins in the social court the assumption of costs for night-time monitoring.<\/p>\n<\/div><\/div><\/article>

\"Thomas<\/span><\/a><\/div>

Thomas Porschen – the new NightWatch Ambassador for Germany<\/a><\/h2>

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Thomas Porschen, 57, married is a well-known and highly appreciated figure in the German and European epilepsy self-help community. <\/p>\n<\/div><\/div><\/article>

\"The<\/span><\/a><\/div>

The EpilepsyWalk<\/a><\/h2>

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Together with the dutch non-profit organization EpilepsyNL, Saskia de Vrey of NightWatch is organizing an epilepsy walk in the Netherlands.<\/p>\n<\/div><\/div><\/article>

\"“Suddenly<\/span><\/a><\/div>

“Suddenly Epilepsy”<\/a><\/h2>

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Julian is 10 years old and he’s a bright boy who likes to play the guitar and loves computer games like all young boys.<\/p>\n<\/div><\/div><\/article>

\"“We<\/span><\/a><\/div>

“We never give up!\u201d<\/a><\/h2>

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Angi Csmarits is a 15-year-old pretty and bright teenager from Maria Alm, who has been affected by epilepsy since she was ten years old. <\/p>\n<\/div><\/div><\/article>

\"“I<\/span><\/a><\/div>

“I love someone with epilepsy”<\/a><\/h2>

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Andrea has had epilepsy since birth and has always had many seizures throughout her life, mainly at night.<\/p>\n<\/div><\/div><\/article>

\"\u201cMummy,<\/span><\/a><\/div>

\u201cMummy, I\u2019m scared I\u2019m going to die\u201d<\/a><\/h2>

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Selina, soon to be 6 years old, has epilepsy. She is a picture-perfect bright adorable girl with big eyes.<\/p>\n<\/div><\/div><\/article>

\"A<\/span><\/a><\/div>

A life with epilepsy and love<\/a><\/h2>

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Florian is 40 years old and lives with his 76-year-old mother in Munich. Florian has had epilepsy since he was 9 years old.<\/p>\n<\/div><\/div><\/article>

\"“Parents<\/span><\/a><\/div>

“Parents must be strong for their children”<\/a><\/h2>

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This is the K\u00f6se family who lives in both Germany and Turkey. Their daughter Yagmur Tuana has grand mal seizures at night.<\/p>\n<\/div><\/div><\/article>

\"NightWatch<\/span><\/a><\/div>

NightWatch and Neuroventis are now fully connected<\/a><\/h2>

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A unique collaboration between a Belgian and Dutch MedTech scale-up offers people with epilepsy more safety and control over their condition.<\/p>\n<\/div><\/div><\/article>

\"SUDEP,<\/span><\/a><\/div>

SUDEP, what are the risks and is there anything you can do about it?<\/a><\/h2>

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Written by Asmund Tielens, founder and CTO of LivAssured (manufacturer of NightWatch)<\/p>\n<\/div><\/div><\/article>

\"Stichting<\/span><\/a><\/div>

Stichting Philadelphia Zorg receives the 500th NightWatch!<\/a><\/h2>

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On behalf of Stichting Philadelphia Zorg, the team at the Westerhof site received the 500th NightWatch!<\/p>\n<\/div><\/div><\/article>

\"NightWatch<\/span><\/a><\/div>

NightWatch and our day and residential care facility<\/a><\/h2>

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Stupid monster, yes, that\u2019s what you are, epilepsy.<\/p>\n<\/div><\/div><\/article>

\"Connecting<\/span><\/a><\/div>

Connecting NightWatch to a Smart Alarm Software Platform<\/a><\/h2>

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A unique example of how NightWatch works within care facility Careander.<\/p>\n<\/div><\/div><\/article>

\"Keith<\/span><\/a><\/div>

Keith talks about his son Thomas who has Dravet Syndrome<\/a><\/h2>

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Over the years we have used several types of monitors to alert us.<\/p>\n<\/div><\/div><\/article><\/div><\/div><\/div>

Stories from our own NightWatch team<\/a><\/div><\/div><\/div><\/div>
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Share your NightWatch Story<\/span><\/h1>\n<\/div>\n
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We at NightWatch have noticed that there is still far too little talk about epilepsy and how to cope with everyday life. We would like to change this. We encourage you to tell us your story because behind every NightWatch there are people. When you tell your story, you share the knowledge you have gained over time and help others better understand daily life with epilepsy, share concerns and protect lives.<\/p>\n

Call us or write your NightWatch story:<\/p>\n\n\n\n
<\/path><\/path><\/g><\/svg><\/td>\n+31 (0)6 21 90 34 19<\/a><\/td>\n<\/tr>\n
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stories@nightwatch.nl<\/span><\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<\/div>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-46708","page","type-page","status-publish","hentry"],"yoast_head":"\nNightWatch Stories<\/title>\n<meta name=\"description\" content=\"Behind every NightWatch is a story worth telling. 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